today (12.05.) is International ME/CFS Day of Action. The day is intended to draw attention to the serious neuroimmunological disease, which, according to estimates, affects several hundred thousand people in Germany.
Activities for ME/CFS Day also took place in Kassel this year. At a lying demonstration last Friday, more information was raised, Research and recognition of the disease are demonstrated and better care is called for for those affected.
The aim of the lying demonstration is to make things visible, what otherwise remains invisible: many of the people, Those suffering from ME/CFS are temporarily or permanently confined to their own bed. Symptoms of the disease include profound exhaustion, Pains, Sensitivity to irritation and cognitive restrictions.
Last year we conducted an interview with someone affected: About the daily struggle with illness, the consequences for one's own life and the stigmatization in a society, which is based on performance.
